Last week (28 June) saw a special event in London to mark the launch of the final report of the Children’s Cancer Priority Setting Partnership (PSP). This report is the result of a joint effort that began in 2019 between the Children’s Cancer and Leukaemia Group (CCLG) and The Little Princess Trust (LPT), in collaboration with the James Lind Alliance (JLA). The aim of the PSP was to identify the 10 most important research questions surrounding children’s cancer, from the perspectives of patients, their families and carers, and the health professionals who treat and care for them.
The project was funded by CCLG and LPT in order to ensure that the research needs of those affected by childhood cancer were taken into consideration. The PSP process included surveys, interviews and workshops designed by the JLA. Patients, childhood cancer survivors, parents, carers, family members, cancer professionals, and even children were invited to be part of the process.
At the launch event, the findings of the report were presented to charities, researchers, research funders, and those affected by childhood cancer. Ashley Ball-Gamble, Chief Executive of CCLG, emphasised the importance of the PSP report, saying: “It was fantastic to be able to present this pivotal piece of work and showcase how we’re shaping the future of children’s cancer research. The PSP report truly represents a new beginning in children’s cancer research as, for the first time, we know what is important to children with cancer and can focus our work and resources accordingly.”
Professor Faith Gibson, who was part of the PSP coordinating team and a member of the Great Ormond Street Hospital for Children, added: “We were really pleased how well the report was received on the evening – now we need action. This action can be taken by any member of the children’s cancer community as these research priorities belong to everyone.”
Phil Brace, Chief Executive of The Little Princess Trust, said: “We were delighted to have been able to joint fund this Children’s Cancer Priority Setting Partnership with CCLG as we always knew that the results would be vital in ensuring all those involved in funding research and supporting children with cancer were aligned and focused on what is important to those affected the most by childhood cancer.”
The findings of the Children’s Cancer Priority Setting Partnership have been made available online and offer a comprehensive overview of the top priorities for children’s cancer research. This report is a crucial resource for those working in the field of childhood cancer as it is based on input from those with first-hand experience.
Derick is an experienced reporter having held multiple senior roles for large publishers across Europe. Specialist subjects include small business and financial emerging markets.